Kirjahaku

Winner of the 2017 Margaret and John Savage First Book Award – Non-Fiction!Jen Powley was diagnosed with multiple sclerosis at fifteen. By thirty-five, she had lost the use of her arms and legs.Just Jen is a powerful memoir that tells the story of Powley's life at the time of her diagnosis, and the infinite, irrevocable ways it has changed since. Powley's writing pulls no punches. She is lively, bold and unapologetic, answering questions people are often afraid to ask about living with a progressive disease. And yet, these snapshots from Powley's life are not tinged with anger or despair. Just Jen is a powerful, uplifting and unforgettable work by an author who has laid her life - and her body - bare in order to survive.

In most Canadian provinces, people with severe physical disabilities are simply warehoused in nursing homes, where many people, especially in the age of homecare, are in the final stages of their lives. It is difficult for a young person to live in a home geared for death; their physical assistance needs are met, but their social, psychological, and emotional needs are not. Jen Powley argues that everyone deserves to live with the dignity of risk.In Making a Home, Powley tells the story of how she got young disabled people like herself out of nursing homes through developing a group home for adults with severe physical disabilities. This book makes a case for living in the community and against dehumanizing institutionalization.