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ISOQOL Dictionary of Quality of Life and Health Outcomes Measurement

ISOQOL Dictionary of Quality of Life and Health Outcomes Measurement

Nancy E Mayo

International Society for Quality of Life Res
2015
pokkari
"Quality of Life" and "Health Outcomes" and other terms referring to the physical, mental and emotional effects experienced by people as they encounter health challenges are in wide use and misuse in the health care and health research community. Many of these terms are used interchangeably without recognizing that they have completely different meanings and, thus, require different measurement approaches and different types of interventions if they are to be optimized. The notion of creating a "dictionary" of these terms arose so that novices and experts, researchers and clinicians, can commonly address these health outcome challenges. The correct term for this collection of definitions is a "vocabulary for a vertical audience" as the definitions reflect the usage in QOL and health outcomes measurement rather than all usages and the definitions were written to have meaning for the novice while still being useful for the expertAs a starting point for the vocabulary, terms were chosen based on the frequency of use in journal articles focussing on of quality of life research. The terms fall broadly into 8 concepts all of which have an identified need for consistent and correct terminology: research process, measurement properties, statistics for QOL research, designs for QOL research, patient reported outcomes (PROs), theories and models, knowledge translation, and personal factors. Rather than being "A malevolent literary device for cramping the growth of a language and making it hard and inelastic" (Ambrose Bierce, The Devil's Dictionary), "This dictionary, however, is a most useful work." (Ambrose Bierce, The Devil's Dictionary). To avoid the "devil", terms reflecting modern advances in outcomes research and design were included even they may not yet be in common usage in QOL research. For example, while designs like the stepped wedge or platform trials may not yet have penetrated the world of QOL research, they will not if no one knows about them. More than 20 people contributed definitions and following editing, the dictionary was opened up for review and comment from members of ISOQOL and their suggestions and modifications were included, adding a component of peer review to the process. Editor, Nancy E. Mayo, BSc(PT), MSc, PhDJames McGill ProfessorFellow of the Canadian Academy of Health SciencesDepartment of MedicineSchool of Physical and Occupational Therapy McGill University [email protected]
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ISOQOL Dicionário de Qualidade de Vida e Medicao de Resultados em Saude

ISOQOL Dicionário de Qualidade de Vida e Medicao de Resultados em Saude

Pedro L. Ferreira; Nancy Mayo

International Society for Quality of Life Res
2017
nidottu
"Qualidade de Vida", "Resultados/Desfechos em Sa de" e outros termos respeitantes aos impactos f sicos, mentais e emocionais vividos por pessoas quando enfrentam desafios de sa de s o muitas vezes bem e mal utilizados nos cuidados de sa de e na comunidade de pesquisa em sa de. Muitos destes termos s o usados de forma livre, sem se reconhecer que t m significados completamente diferentes e que, portanto, exigem diferentes abordagens de medi o e diferentes tipos de interven es para que possam ser otimizadas. A ideia de criar um "dicion rio" destes termos surgiu para que principiantes e especialistas, pesquisadores e cl nicos, possam em conjunto enfrentar esses desafios de resultados/desfechos em sa de. O termo correto para este conjunto de defini es "vocabul rio para um p blico vertical", pois as defini es refletem a sua utiliza o na medi o de qualidade de vida e de resultados/desfechos em sa de; as defini es foram escritas para terem significado para principiantes, sendo, contudo, teis para o especialista.Como ponto de partida para o vocabul rio, os termos foram escolhidos com base na frequ ncia da sua utiliza o em artigos sobre investiga o em qualidade de vida publicados em revistas. Os termos enquadram-se em oito conceitos, carecendo de terminologia consistente e correta: processo de investiga o, propriedades de medi o, estat sticas para investiga o em qualidade de vida, desenho para investiga o em qualidade de vida, resultados/desfechos reportados pelo doente (PRO), teorias e modelos, tradu o de conhecimento, e fatores pessoais. Ao inv s de ser "um dispositivo liter rio mal volo para impedir o crescimento da l ngua e para a tornar r gida e pouco flex vel" (Ambrose Bierce, Dicion rio do Diabo), "este dicion rio , no entanto, uma obra muito til" (Ambrose Bierce, Dicion rio do Diabo).Para evitar o "diabo", os termos que refletem avan os modernos na investiga o ou desenho de resultados/desfechos em sa de foram inclu dos mesmo que ainda n o estejam a ser vulgarmente utilizados na investiga o em qualidade de vida. Por exemplo, embora desenhos de escalonamento ou de plataformas de ensaio ainda n o tenham entrado no mundo da investiga o em qualidade de vida, nunca o ser o se n o forem conhecidos. Mais de 20 pessoas contribu ram com defini es; a vers o original do dicion rio esteve dispon vel para revis o e coment rios pelos membros da ISOQOL e as suas sugest es e propostas de modifica o foram inclu das, acrescentando ao processo uma componente de revis o pelos pares. Por fim, para a vers o em portugu s, outros 20 investigadores de Portugal e do Brasil participaram na edi o.
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The Lifeline: A Team R. A. R. E. Mystery

The Lifeline: A Team R. A. R. E. Mystery

Nancy E. Masters

Createspace Independent Publishing Platform
2018
nidottu
The results of a DNA sequencing lab at a genetics seminar reveal that Elaine O'Brien and her son Nick both share the same mutations but impossibly different DNA. Elaine seeks the help of her friend, geneticist Dr. Jim Johnson, to investigate this discrepancy, and their search for the truth puts her family and the genetic research community in great danger.
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Caratterizzazione morfoanatomica, fisiologica e biochimica

Caratterizzazione morfoanatomica, fisiologica e biochimica

Nancy E de Las Mercedes Tavecchio

Edizioni Sapienza
2021
pokkari
In questo libro abbiamo studiato due specie produttrici di olio per la produzione di biodiesel che sono altamente adattabili agli ambienti aridi: J. curcas e J. macrocarpa. L'obiettivo era di caratterizzare la loro morfologia, anatomia, biochimica e microflora. Nei semi predominano gli acidi grassi insaturi; gli zuccheri e le proteine sono concentrati negli embrioni. I semi di entrambe le specie mostrano un'alta vitalit ; J. curcas ha una maggiore capacit di germinazione e solo J. macrocarpa mostra una dormienza fisica. La crescita precoce di J. curcas maggiore di quella di J. macrocarpa. Il primo internodo del fusto mostra una corteccia spessa in entrambe le specie e il midollo contiene granuli di amido. La densit stomatica del lato abassiale di J. macrocarpa inferiore a quella di J. curcas. Le analisi del polimorfismo di lunghezza del frammento terminale di restrizione corrispondono a microrganismi del genere Streptomyces in entrambe le specie. L'elettroforesi del gel indica la presenza di Chthonomonas in J. curcas e Pseudanabaena in entrambe le specie. Si conclude che J. curcas ha un alto potere di germinazione, un'alta concentrazione di olio di semi e una rapida crescita iniziale.
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The Water and the Blood

The Water and the Blood

Nancy E. Turner

HARPER PERENNIAL
2002
nidottu
"An amazingly drawn portrait of small town souls. . . . Turner is adept at creating characters with an unsetting undercurrent that suggests none are whom they seem to be." --Fort Worth Star-TelegramRare is the gift of a writer who is able to conjure up the voices of very different worlds, to give them heat and power and make them sing. Such is the talent of Nancy E. Turner. Her beloved and award-winning first novel, These Is My Words, opened readers to the challenges of a woman's life in the nineteenth-century Southwest. Now this extraordinary writer shifts her gaze to a very different world--East Texas in the years of the Second World War--and to the life of a young woman named Philadelphia Summers, known against her will as Frosty.From the novel's harrowing opening scene, Frosty's eyes survey the landscape around her--white rural America--with the awestruck clarity of an innocent burned by sin. In her mother and sisters she sees fear and small-mindedness; in the eyes of local boys she sees racial hatred and hunger for war. When that war finally comes, it offers her a chance for escape--to California, and the caring arms of Gordon Benally a Native-American soldier. But when she returns to Texas she must face the rejection of a town still gripped by suspicion--and confront the memory of the crime that has marked her soul since adolescence.Propelled by the quiet power of one woman's voice, The Water and the Blood is a moving and unforgettable portrait of an America of haunted women and dangerous fools--an America at once long perished and with us still.
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The Chinese Lady

The Chinese Lady

Nancy E. Davis

Oxford University Press Inc
2019
sidottu
In 1834, a young Chinese woman named Afong Moy arrived in America, her bound feet stepping ashore in New York City. She was both a prized guest and advertisement for a merchant firm--a promotional curiosity used to peddle exotic wares from the East. Over the next few years, she would shape Americans' impressions of China even as she assisted her merchant sponsors in selling the largest quantities of Chinese goods yet imported for the burgeoning American market. Americans views of the exotic Far East in this early period before Chinese immigration were less critical than they would later become. Afong Moy became a subject of poetry, a trendsetter for hair styles and new fashions, and a lucky name for winning racehorses. She met Americans face to face in cities and towns across the country, appearing on local stages to sell and to entertain. Yet she also moved in high society, and was the first Chinese guest to be welcomed to the White House. However, this success was not to last. As her novelty wore off, Afong Moy was cast aside by her managers. Though concerned public citizens rallied in support, her fame dwindled and she spent several years in a New Jersey almshouse. In the late 1840s, P.T. Barnum offered Afong Moy several years of promising renewal as the compatriot of Tom Thumb, yet this stint too was short-lived. In this first biography, Nancy E. Davis sheds light on the mystery of Afong Moy's life as a Chinese woman living in a foreign land.
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All About Osteoarthritis

All About Osteoarthritis

Nancy E. Lane; Daniel J. Wallace

Oxford University Press Inc
2002
sidottu
Osteoarthritis afflicts about 25 million people in the United States--two-thirds of all people over 65--and the numbers will only grow in the coming years as baby boomers age. Yet few who suffer from this disease know much about it--how to relieve the pain, what exercises might help lessen their suffering, how to cut down on visits to the doctor. In All About Osteoarthritis, two leading authorities on the disease--Nancy E. Lane and Daniel J. Wallace--join forces to provide the most up-to-date and comprehensive discussion of osteoarthritis available, explaining what osteoarthritis is, how patients can help themselves, and how to find the best resources to manage the disorder. The authors offer information in a clear and accessible style, with detailed illustrations showing how key joints--knees, hips, fingers, backs, hands, and necks--degenerate. They take readers through the steps of diagnosis, how the body is affected, and ways to manage the disease. In user-friendly language, they describe all of the established treatment options, including new medications and their side effects, and help readers determine when surgery may be necessary. The authors also examine alternative treatments, clarifying which work, which may work, and which definitely do not. And they outline recent advances in the field and discuss where these breakthroughs may lead us. While osteoarthritis most acutely affects the elderly, it starts years before, and many people suffer the aches and pains of the condition well before old age. For aging baby boomers, much can be done before osteoarthritis becomes chronic and debilitating. This comprehensive guide will provide an excellent resource for patients and their families, caregivers, and medical professionals.
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The Chinese Lady

The Chinese Lady

Nancy E. Davis

OXFORD UNIVERSITY PRESS INC
2022
nidottu
In 1834, a young Chinese woman named Afong Moy arrived in America, her bound feet stepping ashore in New York City. She was both a prized guest and advertisement for a merchant firm--a promotional curiosity used to peddle exotic wares from the East. Over the next few years, she would shape Americans' impressions of China even as she assisted her merchant sponsors in selling the largest quantities of Chinese goods yet imported for the burgeoning American market. Americans views of the exotic Far East in this early period before Chinese immigration were less critical than they would later become. Afong Moy became a subject of poetry, a trendsetter for hair styles and new fashions, and a lucky name for winning racehorses. She met Americans face to face in cities and towns across the country, appearing on local stages to sell and to entertain. Yet she also moved in high society, and was the first Chinese guest to be welcomed to the White House. However, this success was not to last. As her novelty wore off, Afong Moy was cast aside by her managers. Though concerned public citizens rallied in support, her fame dwindled and she spent several years in a New Jersey almshouse. In the late 1840s, P.T. Barnum offered Afong Moy several years of promising renewal as the compatriot of Tom Thumb, yet this stint too was short-lived. In this first biography, Nancy E. Davis sheds light on the mystery of Afong Moy's life as a Chinese woman living in a foreign land.
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Chinatown, Honolulu

Chinatown, Honolulu

Nancy E. Riley

Columbia University Press
2024
sidottu
The Chinese experience in Hawai‘i has long been told as a story of inclusion and success. During the Cold War, the United States touted the Chinese community in Hawai‘i as an example of racial harmony and American opportunity, claiming that all ethnic groups had the possibility to attain middle-class lives. Today, Honolulu’s Chinatown is not only a destination for tourism and consumption but also a celebration of Chinese accomplishments, memorializing past discrimination and present prominence within a framework of multiculturalism. This narrative, however, conceals many other histories and processes that played crucial roles in shaping Chinatown.This book offers a critical account of the history of Chinese in Hawai‘i from the mid-nineteenth century to the present in this context of U.S. empire, settler colonialism, and racialization. Nancy E. Riley foregrounds elements that are often left out of narratives of Chinese history in Hawai‘i, particularly the place of Native Hawaiians, geopolitics and U.S. empire building, and the ongoing construction of race and whiteness. Tracing how Chinatown became a site of historical remembrance, she argues that it is also used to reinforce the ideology of neoliberal multiculturalism, which upholds racial hierarchy by lauding certain ethnic groups while excluding others. An insightful and in-depth analysis of the story of Honolulu’s Chinatown, this book offers new perspectives on the making of the racial landscape of Hawai‘i and the United States more broadly.
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Chinatown, Honolulu

Chinatown, Honolulu

Nancy E. Riley

Columbia University Press
2024
pokkari
The Chinese experience in Hawai‘i has long been told as a story of inclusion and success. During the Cold War, the United States touted the Chinese community in Hawai‘i as an example of racial harmony and American opportunity, claiming that all ethnic groups had the possibility to attain middle-class lives. Today, Honolulu’s Chinatown is not only a destination for tourism and consumption but also a celebration of Chinese accomplishments, memorializing past discrimination and present prominence within a framework of multiculturalism. This narrative, however, conceals many other histories and processes that played crucial roles in shaping Chinatown.This book offers a critical account of the history of Chinese in Hawai‘i from the mid-nineteenth century to the present in this context of U.S. empire, settler colonialism, and racialization. Nancy E. Riley foregrounds elements that are often left out of narratives of Chinese history in Hawai‘i, particularly the place of Native Hawaiians, geopolitics and U.S. empire building, and the ongoing construction of race and whiteness. Tracing how Chinatown became a site of historical remembrance, she argues that it is also used to reinforce the ideology of neoliberal multiculturalism, which upholds racial hierarchy by lauding certain ethnic groups while excluding others. An insightful and in-depth analysis of the story of Honolulu’s Chinatown, this book offers new perspectives on the making of the racial landscape of Hawai‘i and the United States more broadly.
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A History of Federal Crime Control Initiatives, 1960-1993

A History of Federal Crime Control Initiatives, 1960-1993

Nancy E. Marion

Praeger Publishers Inc
1994
sidottu
This history of American crime policy at the federal level compiles and examines for the first time the record of recent presidential administrations in the area of crime control--their agendas and the legislation actually enacted by the Congress. Nancy Marion analyzes the relationship between politics and criminal justice and concludes, after reviewing the administrations of Kennedy through Clinton, that the federal response to crime has been largely symbolic, and that federal policies tend to have provided political benefit to elected officials while not actually reducing crime by any significant amount. This study and its findings will be of interest to scholars in political science, government, criminology, and criminal justice.
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The Star Garden

The Star Garden

Nancy E. Turner

St. Martin's Griffin
2008
nidottu
From the bestselling author of These Is My Words comes this exhilarating follow-up to the beloved Sarah's Quilt. In the latest diary entries of pioneer woman Sarah Agnes Prine, Nancy E. Turner continues Sarah's extraordinary story as she struggles to make a home in the Arizona Territory. It is winter 1906, and nearing bankruptcy after surviving drought, storms, and the rustling of her cattle, Sarah remains a stalwart pillar to her extended family. Then a stagecoach accident puts in her path three strangers who will change her life. In sickness and in health, neighbor Udell Hanna remains a trusted friend, pressing for Sarah to marry. When he reveals a plan to grant Sarah her dearest wish, she is overwhelmed with passion and excitement. She soon discovers, however, that there is more to a formal education than she bargained for.Behind the scenes, Sarah's old friend Maldonado has struck a deal with the very men who will become linchpins of the Mexican Revolution. Maldonado plots to coerce Sarah into partnership, but when she refuses, he devises a murderous plan to gain her land for building a railroad straight to Mexico. When Sarah's son Charlie unexpectedly returns from town with a new bride, the plot turns into an all-out range war between the two families. Finally putting an end to Udell's constant kindnesses, Sarah describes herself as "an iron-boned woman." She wants more than to be merely a comfortable fill-in for his dead wife. It is only through a chance encounter that she discovers his true feelings, and only then can she believe that a selfless love has at last reached out to her. . . .
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Making Environmental Law

Making Environmental Law

Nancy E. Marion

Praeger Publishers Inc
2011
sidottu
From Eisenhower to Obama, this book provides a comprehensive analysis of the policies Congress and the president have proposed and passed to protect the environment over time.The U.S. federal government first began to consider legislation to protect the environment and natural resources in 1940s. Since that time, Congress and the president have considered and passed numerous environmental policies—laws that serve to protect the quality of the air we breathe, the water we drink, the natural beauty of the land, and the animals that live both on land and in the water.In Making Environmental Law: The Politics of Protecting the Earth, experienced and accomplished environmental law researcher Nancy E. Marion shows what policies Congress have proposed and passed to protect the environment over time. Each chapter focuses on the members of Congress's response to a different environmental concern, such as ocean dumping, pesticides, and solid waste. With "green" awareness now affecting every aspect of our modern world, this text serves as an invaluable reference for students and researchers who need a deeper historical background on the political aspects of these issues.
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Women in Foreign Policy

Women in Foreign Policy

Nancy E. McGlen; Meredith Reid Sarkees

Routledge
2018
sidottu
Originally published in 1993, this title provides a unique insight into the challenges faced by the women who shaped United States foreign policy at the time. The authors examine the "Gender Gap" in beliefs between men and women in the State and Defense departments. Highlighted by interviews with ten leading women in the field – including Jeane Kirkpatrick and Rozanne Ridgway, then the two highest ranking women in foreign policy – the book provides an intimate glimpse into the making of foreign policy during the Reagan administration. Based on 79 interviews with women and men senior executives in the departments of State and Defense, this title poses a number of key questions. Who are the women in the State and Defense Departments, and how do their background and lifestyle choices compare with those of their male colleagues? What problems do they confront in an attempt to influence policy in the international arena? Do the women on the inside make a difference in how policy is formulated or how the departments are managed? Are women by nature more peaceful than men? Will they alter the face of foreign policy? Or are they more likely to hold the same views as men? This title provided an important insight into these questions, and would have been provocative reading at the time of publication.
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Women in Foreign Policy

Women in Foreign Policy

Nancy E. McGlen; Meredith Reid Sarkees

Routledge
2020
nidottu
Originally published in 1993, this title provides a unique insight into the challenges faced by the women who shaped United States foreign policy at the time. The authors examine the "Gender Gap" in beliefs between men and women in the State and Defense departments. Highlighted by interviews with ten leading women in the field – including Jeane Kirkpatrick and Rozanne Ridgway, then the two highest ranking women in foreign policy – the book provides an intimate glimpse into the making of foreign policy during the Reagan administration. Based on 79 interviews with women and men senior executives in the departments of State and Defense, this title poses a number of key questions. Who are the women in the State and Defense Departments, and how do their background and lifestyle choices compare with those of their male colleagues? What problems do they confront in an attempt to influence policy in the international arena? Do the women on the inside make a difference in how policy is formulated or how the departments are managed? Are women by nature more peaceful than men? Will they alter the face of foreign policy? Or are they more likely to hold the same views as men? This title provided an important insight into these questions, and would have been provocative reading at the time of publication.
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Raven's Glen

Raven's Glen

Nancy E. Polin

Evernight Publishing
2020
nidottu
Skylar Donaghue has no memory of the night her parents died. When the perfect career opportunity arises, she ignores her brother's superstitious warnings, choosing to leave the Choctaw reservation where she grew up and return to the place of her birth.Widowed and caring for his young daughter, relationships are the last thing on Jack Langham's mind. A chance encounter finds him intrigued, then captivated by a beautiful, but mysterious, violet-eyed woman and before he realizes it, he's falling faster than fate may ever allow.Stephen Donaghue holds the key to that long ago night, but never speaks of it. Now that Skylar is being pulled into the past, he fears its ghosts will darken their future and claim his sister forever...
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Sound and Deception

Sound and Deception

Nancy E Polin

Evernight Publishing
2023
pokkari
A family emergency brings Klahanie Bishop back to the tiny Pacific Northwest island where she grew up. Going home wasn't something she'd anticipated, nor had she anticipated running into Noah, the childhood boyfriend who'd humiliated her years ago. Noah McLeod is torn when Klahanie returns to the island. The girl he'd loved forever had evolved into a stunning, free-spirited young woman, and Noah aches to grow close again, but fears the demons from his past will destroy any hope of a future. But someone else is on the island, someone who blends with the locals and hides behind smiling eyes, someone with a cold-blooded secret ...
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Walk with Me: A Counting Adventure

Walk with Me: A Counting Adventure

Nancy E. Uslan

FARRAR, STRAUS GIROUX INC
2025
pahvisivuinen
Explore the outdoors in this vibrant counting adventure! Count lizards, monkeys, zebras, and more colourful animals in this delightful rhyming journey set in Rwanda and illustrated with bright patterns inspired by East African kitenge designs. Just right for reading to little ones, this vivid book is the perfect introduction to counting from one to ten. The author's proceeds from this book's sales support her nonprofit foundation, NEU Global Inc, which has provided over 40,000 books to children in Rwanda.
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