Bendy Wendy and the (Almost) Invisible Genetic Syndrome

Kirjan Bendy Wendy and the (Almost) Invisible Genetic Syndrome (2017) on kirjoittanut Brad T Tinkle. Kirjan kieli on englanti, ja sen on kustantanut Left Paw Press, LLC. Kirja on laajuudeltaan 50 sivua ja se on pokkari.

Wendy is a perky, vivacious adolescent entering middle school with a lifelong vision of becoming an cheerleader. Wendy has been called bendy by family and friends because she's been limber and flexible throughout her life, earning her the nickname 'Bendy Wendy. ' As soon as she's about to realize her ultimate aspiration of making the cheerleading squad as a flyer, Wendy worries that her dream will be shattered by constant physical issues plaguing her during rigorous practices and performances. On the outside, Wendy looks perfectly 'normal, ' but clearly something more is going on. Join Wendy and her parents on their journey through a diagnosis and revelations of Ehlers-Danlos Syndrome / joint hypermobility, an 'almost' invisible genetic syndrome. "Bendy Wendy and the (Almost) Invisible Genetic Syndrome. .. A story of one tween's diagnosis of Ehlers-Danlos Syndrome / joint hypermobility" was written to fill a need for families, children, and tweens that find themselves in a position of understanding and explaining, in basic terms, Ehlers-Danlos Syndrome and the issues associated with it. It's been thoughtfully developed by bone and connective tissue disorder expert Dr. Brad T Tinkle and his award-winning children's book author wife, Laurren Darr. For almost a decade, they had dinner-time conversations on how to better serve and reassure children and families affected by Ehlers-Danlos Syndrome / joint hypermobility. "Bendy Wendy and the (Almost) Invisible Genetic Syndrome. .. A story of one tween's diagnosis of Ehlers-Danlos Syndrome / joint hypermobility" is the culmination of that goal.