Alaim Passos Bispo

Cette recherche prend la s gr gation et la stigmatisation, caract ristiques de la l pre, comme r f rences pour discuter des principaux aspects religieux, politiques et scientifiques li s la maladie, sur la base de textes sacr s et de certaines doctrines scientifiques du 19e si cle, et de leurs principales cons quences dans la consolidation de la lecture que la soci t a construite autour de la l pre. Les origines de la maladie sont pr sent es d'un point de vue historique et pid miologique, ainsi que les principales implications pour les soci t s au cours des si cles. Nous analysons les diff rentes mani res de traiter la maladie d'un point de vue physiologique et social, en discutant du processus d'isolement obligatoire, en particulier au Br sil. La discussion est bas e sur les relations complexes qui entourent l'hospitalisation obligatoire des l preux. Le travail a t organis en trois parties: la l pre vivante, la l pre et la sant publique, et le macro-sc nario de la l pre. L'ensemble de la recherche est impr gn d'un entretien avec un interlocuteur qui a v cu toute sa vie avec la l pre et qui a racont sa vie quotidienne en se basant sur des d clarations de moments tr s sp cifiques de sa vie.

This research takes segregation and stigma, the hallmarks of leprosy, as references to discuss the main religious, political and scientific aspects linked to the disease, based on sacred texts and some scientific doctrines from the 19th century, and their main consequences in consolidating the reading that society built around leprosy. The origins of the disease are presented from a historical and epidemiological point of view, as well as the main implications for societies over the centuries. We analyze the different ways of treating the disease from both a physiological and social perspective, discussing the process of compulsory isolation, especially in Brazil. The discussion is based on the complex relationships surrounding the compulsory hospitalization of lepers. The work was organized into three parts: live leprosy, leprosy and public health and the macroscope of leprosy. The entire research is permeated by an interview with an interlocutor who has lived with leprosy all his life and narrated his daily life based on statements from very specific moments in his life.

Doen as infectocontagiosas ainda ocupam um importante lugar no perfil patol gico brasileiro. No entanto, estudos sobre as enfermidades, em particular a hansen ase, restringem-se, quase exclusivamente, dimens o biom dica ou cl nica. Portanto s o escassos os trabalhos que abordam a hansen ase na perspectiva sociocultural, especialmente no Brasil. Assim, sabe-se mais sobre a doen a do que sobre o doente. Pois o fato das informa es se restringirem ao campo biom dico, ao que parece, prejudica o tratamento e a cura. Haja vista a hansen ase ser uma doen a que, entre outros sintomas, afeta, de modo substancial, a identidade social do paciente, tendo em vista o aspecto estigmatizante da enfermidade. O referido trabalho entre outras quest es se prop e a permitir aos estudantes, pesquisadores de gradua o e p s-gradua o das Ci ncias Sociais, Sa de Coletiva e reas afins, uma leitura mais ampliada e atualizada sobre as complexidades que envolvem as rela es entre sociedade, estigma e hansen ase.