Marian Barnes

What are the implications of caring about the things we research? How does that affect how we research, who we research with and what we do with our results? Proposing what Joan C. Tronto has called a ‘paradigm shift’ in research thinking, this book invites researchers across disciplines and fields of study to do research that thinks and acts with care. The authors draw on their own and others’ experiences of researching, the troubles they encounter and the opportunities generated when research is approached as a caring practice. Care ethics provides a guide, from starting out, designing and conducting projects to thinking about research legacies. It offers a way in which research can help repair harms and promote justice.

What are the implications of caring about the things we research? How does that affect how we research, who we research with and what we do with our results? Proposing what Joan C. Tronto has called a ‘paradigm shift’ in research thinking, this book invites researchers across disciplines and fields of study to do research that thinks and acts with care. The authors draw on their own and others’ experiences of researching, the troubles they encounter and the opportunities generated when research is approached as a caring practice. Care ethics provides a guide, from starting out, designing and conducting projects to thinking about research legacies. It offers a way in which research can help repair harms and promote justice.

Pilsdon sits within a lengthy tradition of hospitality offered by faith communities of different types and of both monastic and lay community life. People of all faiths and none are welcomed as guests to live and work alongside the community members, staying for as long as they need to. Located in the West Dorset countryside, the community operates as a small farm, caring for cows, sheep, pigs, hens and extensive vegetable and fruit gardens through principles of environmental sustainability. It offers guests the opportunity to recover a positive sense of self through being alongside others and to start to repair what are often very broken lives. The stories told in the book through the voices of those who have experienced this way of life give a vivid and compelling account of the benefits of ‘living in common’. Moreover, the book locates this account within a broader analysis of the changing social, cultural and policy context as it relates to people with problems of mental illness, addiction and homelessness. Living Life in Common: Stories from the Pilsdon Community is about communal living, as practised by a community through a period of substantial cultural and social change. The book presents in their own words the first-hand experiences of people who have known and lived in the Pilsdon Community throughout its 62 year history. It reflects on the enduring values of a way of life that has survived both internal challenges and the shock of a global pandemic to offer hope and inspiration for how we can live well together.

The understanding that humans are relational beings is central to the development of an ethical perspective that is built around the significance of care in all our lives. Our survival as infants is dependent on the care we receive from others. And for all of us, in particular, in older age, there are times when illness, emotional or physical frailty, mean that we require the care of others to enable us to deal with everyday life. With this in mind, this book presents the findings of a project that seeks to understand what well-being means to older people and to influence the practice of those who work with older people. Its starting point was a shared commitment amongst researchers and an NGO collaborator to the value of working with older people in both research and practice, to learn from them and be influenced by them rather than seeing them as the 'subjects' of a research project. Theoretically, the authors draw upon a range of studies in critical gerontology that seek to understand how experiences of ageing are shaped by their social, economic, cultural and political contexts. By employing a broad body of work that challenges normative assumptions of 'successful' ageing, ' the authors draw attention to how these assumptions have been constructed through neo-liberal policies of 'active ageing.' Notably, they also apply insights from feminist ethics of care, which are based on a relational ontology that challenges neo-liberal assumptions of autonomous individualism. Influenced by relational ethics, they are attentive to older people both as co-researchers and research respondents. By successfully applying this perspective to social care practice, they facilitate the need for practitioners to reflect on personal aspects of ageing and care but also to bridge the gap between the personal and the professional.

Care has been struggled for, resisted and celebrated. The failure to care in 'care services' has been seen as a human rights problem and evidence of malaise in contemporary society. But care has also been implicated in the oppression of disabled people and demoted in favour of choice in health and social care services. In this bold wide ranging book Marian Barnes argues for care as an essential value in private lives and public policies. She considers the importance of care to well-being and social justice and applies insights from feminist care ethics to care work, and care within personal relationships. She also looks at 'stranger relationships', how we relate to the places in which we live, and the way in which public deliberation about social policy takes place. This book will be vital reading for all those wanting to apply relational understandings of humanity to social policy and practice.

Many policy and practice initiatives that aim to prevent social exclusion focus on children and young people. This book seeks to consider new approaches to understanding the complexities of prevention, and how these new understandings can inform policy and practice. The authors use evidence from the National Evaluation of the Children's Fund to illustrate and explore the experiences of children and families who are most marginalised. They consider the historical context of approaches to child welfare, and present a new framework for understanding and developing preventative polices and practice within the context of social exclusion. Preventative initiatives such as the Children's Fund have supported large-scale complex evaluations that have generated rich and important data about strategies for addressing social exclusion and what they can achieve. The findings of this book have direct relevance for all those engaged in developing preventative policy and practice and will therefore be of interest to policy makers, practitioners and students of child welfare and social policy more broadly, in providing a timely discussion of key debates in designing, delivering and commissioning preventative services.

Public participation is central to a wide range of current public policies - not only in the UK, but elsewhere in the developed and the developing world. There are substantial aspirations for what enhanced participation can achieve. This book offers a critical examination of both the discourse and practice of participation in order to understand the significance of this explosion in participatory forums, and the extent to which such practices represent a fundamental change in governance. Based on 17 case studies across a range of policy areas in two English cities, the authors address key issues such as: the way in which notions of the public are constructed; the motivation of participants; how the interests and identities of officials and citizens are negotiated within forums; and the ways in which institutions enable and constrain the development of participation initiatives. Much of the literature on public participation is highly normative. This book draws from detailed empirical work, theories of governance, of deliberative democracy and social movements to offer a nuanced account of the dynamics of participation and to suggest why experiences of this can be frustrating as well as transformative. This book will be essential reading for students of public and social policy and offers important insights for those directly engaged in developing participation initiatives across the public sector

Care giving has become a high-profile issue in policy and practice, yet much of the literature conceives it as burdensome or even oppressive. Drawing extensively on real-life examples of care giving relationships, Caring and Social Justice reveals an uplifting alternative approach to caring that highlights its contribution to social cohesion and social justice. It offers a clear overview of the literature including debates about an 'ethic of care' and offers a thought-provoking survey ideal for undergraduate and postgraduate study.

Care giving has become a high-profile issue in policy and practice, yet much of the literature conceives it as burdensome or even oppressive. Drawing extensively on real-life examples of care giving relationships, Caring and Social Justice reveals an uplifting alternative approach to caring that highlights its contribution to social cohesion and social justice. It offers a clear overview of the literature including debates about an 'ethic of care' and offers a thought-provoking survey ideal for undergraduate and postgraduate study.

One of the most critical developments within `welfare' in recent years, has been the transformation of service users from `passive recipients' to `active subjects' of welfare policy and practice. People who use services have challenged paternalistic notions that professionals are always the experts, and have offered alternative analyses both of the experience of living with disability or illness, and of policy and practice responses to such experiences.Taking Over the Asylum explores the way in which users or survivors of mental health services - people too often regarded as `lacking capacity' to make decisions about their own care - have taken action to empower themselves. The authors examine evidence of the impact this action has had on their lives, on services, and on practice in mental health. They argue that disempowerment can be exacerbated by racist and gendered assumptions and they question the way we think about `mental health' and `mental illness' and what it means to live with `madness'. Drawing on the writings of activists and on international research evidence of action by users and survivors, this important book explores different strategies being adopted to achieve change both within the mental health system and in the lives of those who live with psychological distress. The wide-ranging analysis of current debates provides a valuable and clear insight into the potential and dilemmas of collective action by service users and survivors.

Self-organised user groups of social and health care services are playing an increasingly significant part within systems of local governance. Based on detailed empirical work looking at the user and 'official' perspective, this report includes studies of user groups and officials in two policy areas - mental health and disability. The authors examine both the strategies user groups adopt to seek their objectives, and explore conceptual issues relating to notions of consumerism and citizenship. Unequal partners thus contributes to our understanding of the role of user self-organisation in empowering people as consumers, and in enabling excluded people to become 'active' citizens. The authors discuss the way in which self-organisation may be supported without being controlled by officials in statutory agencies, highlighting the need to understand and distinguish between user self-organisation and user involvement. The report concludes that if policy makers are genuinely committed to greater user involvement in design, planning and delivery of services, then user self-organisation needs to be both encouraged and supported materially, without being 'captured' or incorporated into management. The research points to the significance of 'user groups' in challenging the exclusion of disabled citizens from all aspects of social, economic, political and cultural life. Unequal partners is essential reading for health and social care policy makers and practitioners, lobby and pressure groups, students and academics in health and social policy and local government studies, and users.