Tula Brannelly

What are the implications of caring about the things we research? How does that affect how we research, who we research with and what we do with our results? Proposing what Joan C. Tronto has called a ‘paradigm shift’ in research thinking, this book invites researchers across disciplines and fields of study to do research that thinks and acts with care. The authors draw on their own and others’ experiences of researching, the troubles they encounter and the opportunities generated when research is approached as a caring practice. Care ethics provides a guide, from starting out, designing and conducting projects to thinking about research legacies. It offers a way in which research can help repair harms and promote justice.

What are the implications of caring about the things we research? How does that affect how we research, who we research with and what we do with our results? Proposing what Joan C. Tronto has called a ‘paradigm shift’ in research thinking, this book invites researchers across disciplines and fields of study to do research that thinks and acts with care. The authors draw on their own and others’ experiences of researching, the troubles they encounter and the opportunities generated when research is approached as a caring practice. Care ethics provides a guide, from starting out, designing and conducting projects to thinking about research legacies. It offers a way in which research can help repair harms and promote justice.

Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.

Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.